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Graphic featuring three summit peaks, next to a rainbow that includes the disability pride flag colors, and a sun on the far right side. Text reads: Speak Up Stand Up Disability Advocacy Summit January 2026

The Speak Up Stand Up Summit is a virtual disability advocacy series led by people with disabilities, for people with disabilities.

 

Summit Day #1

Friday, January 9
10:00 am-12:30 pm

Focus:
What's Going On?
Community Building

Keynote Speaker
Dom Kelly, New Disabled South

Summit Day #2

Friday, January 16
10:00 am-12:30 pm

Focus:
What Can I Do?
Let's Make A Plan!

Keynote Speaker
Rebecca Cokley, Ford Foundation

Summit Day #3

Thursday, January 22
10:00 am-12:30 pm

Focus:
Share Your Story
Let's Take Action!

Keynote Speaker
Former Governor John Bel Edwards

 

About the Summit

Feeling stressed by the world? Will Johnson wants you to know you’re not alone.

Will teamed up with other self-advocates to organize a space where our community can stay informed, motivated, and never lose sight of our power to create change. 

Watch Will announce the summit (VIDEO)

Will Johnson speaking at a podium with the LSUHSC seal.

 

 

Summit Day 3: “Let's Take Action!

Day #3 brings everything together as participants use the advocacy tools they’ve learned to craft and share their stories, speak up with purpose, and take action to create real change.


Day 3 Agenda

 

10:00 AM — Welcome with Will Johnson

10:15 AM Perspectives from a Legislator: Connecting Policy and Personal Stories with Former Governor John Bel Edwards

10:45 AM Stand Up, Speak Out! with Maria Town, President and CEO or American Association of People with Disabilities (AAPD

11:25 AM Breakout: What’s Your Story?

11:40 AMPersonal Advocacy and Storytelling with Jeiri Flores from the Strong Center for Developmental Disabilities and Tim Villegas of Think Inclusive podcast

12:05 PM Breakout: Sharing Your Story

12:30 PM — How to Stay Connected with Will Johnson


Day 3 Speakers

John Bel Edwards

Perspectives from a Legislator: Connecting Policy and Personal Stories

On Jan. 11, 2016, John Bel Edwards was sworn in as the 56th governor of Louisiana.

The governor grew up in Amite, La. as one of eight children. With four Tangipahoa Parish sheriffs in his lineage, he learned the importance of public service at an early age.

Gov. Edwards graduated in 1988 from the United States Military Academy at West Point. The governor served eight years as an Airborne Ranger on active duty with the United States Army and commanded a rifle company in the 82nd Airborne Division at Fort Bragg, N.C. He went on to graduate Order of the Coif from Louisiana State University Law Center and set up a civil law practice in his home town of Amite.

In 2008, he was elected to the Louisiana House of Representatives from District 72, where he served for eight years until the voters of Louisiana elected him governor in November of 2015.

Gov. Edwards and his wife, First Lady Donna Edwards, have three children: Samantha Bel, Sarah Ellen and John Miller.

Maria Town

Presentation: Stand Up, Speak Out!

Maria Town is the President and CEO of the American Association of People with Disabilities. In this role, she works to increase the political and economic power of people with disabilities.

Prior to this she served as the Director of the City of Houston Mayor’s Office for People with Disabilities where she advocated for the rights and needs of citizens with disabilities, served as a liaison between the mayor, city council, city departments and other public and private entities on matters pertaining to people with disabilities in Houston, and established local and national partnerships to advance inclusion. 

Town is the former senior associate director in the Obama White House Office of Public Engagement where she managed the White House's engagement with the disability community and older Americans. She also managed the place-based portfolio and coordinated engagement across Federal agencies. Town also worked as policy advisor at the Department of Labor's Office of Disability Employment Policy. Town led and coordinated numerous efforts to improve employment outcomes for youth and young adults with disabilities. She has particular expertise in areas of youth development and leadership and promoting college and career readiness for all youth. Town is a member of the board of the Leadership Conference on Civil and Human Rights. She hails from Louisiana, where her family still resides.

 

 

Summit Day 2: “Let's Make A Plan!”

Day #2 looks at where we’ve been, where we’re going, and how we can take action today to protect disability justice.


Day 2 Agenda

 

10:00 AM — Welcome with Will Johnson

10:15 AM — Where We Have Been, Where We Are Going with Rebecca Cokley from the Ford Foundation’s  U.S. Disability Rights program

10:50 AM — Breakout Group: What We Need to Do

11:05 AM — Advocacy 101 with LaCAN Region Leaders

11:30 AM — Connect with your LaCAN Region

11:50 AM — Breakdown of Best Advocacy Tools with Rebecca Fruge of Partners in Policymaking

12:15 PM — Breakout Group: What Advocacy Tool will you Focus on?

12:30 PM — Closing with Will Johnson


Day 2 Speakers

Rebecca Cokley

Presentation: Where We Have Been, Where We Are Going

Rebecca Cokley is the Program Officer for the Ford Foundation’s first-ever U.S. Disability Rights program, which is focuses on building disability led organizations, making it easier for disabled people to save money, changing how we talk about disability and helping more funders learn about disability rights. Before she joined Ford, she created the Disability Justice Initiative at the Center for American Progress which worked to protected the rights and services disabled people depend on for survival. At CAP, she led a campaign that worked to get 12 presidential candidates to write out their disability policy priorities. A three-time presidential appointee, Rebecca served in key policy roles at the U.S. Department of Education (where she introduced the language of the “ADA Generation’) and the U.S. Department of Health and Human Services, as well as recruited people from all over the country to work for President Obama. She also spent four years as the Executive Director for the National Council on Disability. Rebecca has spoken at Netroots Nation, New York City Comic-Con, Yale University, the Women’s March National Conference and given a TedX talk. Rebecca has published with The Nation, The Body Is Not An Apology, Rewire, CNN, Refinery 29, the Washington Post, and been a guest on MSNBC and Last Week Tonight with John Oliver. Rebecca sits on the board of directors for Rockwood Leadership Institute, the NY Women’s Foundation, and Common Cause and is an Equity Advisory Board member for Sephora. Rebecca has a Bachelor’s Degree in Politics from the University of California, Santa Cruz where she was a Karl S. Pister Scholar.

 

Summit Day 1: “What’s Going On?”

Day #1 looks at the threats of state and federal policies and budget cuts, and considers what this means for our future.


Day 1 Agenda

 

10:00 AM - Welcome with Will Johnson

10:15 AM - Disabled Voters and New Disabled South with Dom Kelly of New Disabled South

10:45 AM - Breakout Group: Dreaming of New Possibilities 

11:00 AM - Building Care Networks with Louisiana Mutual Aid Groups: Roishetta Sibley Ozane of Vessel Project of Louisiana, Jessica Michot of Trach Mommas, Leonardo Meza-Juarez of Feeding Others Outreach and Distribution (F.O.O.D), and facilitatated by with Lillian DeJean of the Louisiana Youth Leadership Forum

11:30 AM - Breakout Group: Building Community 

11:45 AM - Meet your DD Network with the Louisiana Developmental Disabilities Council, Disability Rights Louisiana, and Human Development Center at LSU Health New Orleans

11:55 AM - An Overview of Core Disability Rights Laws in the United States with Tory Rocca of Disability Rights Louisiana 

12:30 PM - Closing with Will Johnson


Day 1 Speakers

Dom Kelly

Presentation: Disabled Voters and New Disabled South

Dom Kelly is the Co-Founder, President & CEO of New Disabled South and New Disabled South Rising. A disability advocate since age four, Dom has led organizing, fundraising, and narrative change efforts across the South. He’s a 2025 Atlantic Fellow for Health Equity and a 2023 J.M. Kaplan Innovation Prize winner. A former touring musician turned movement leader, he focuses on advancing disability justice and building power for marginalized communities. Dom lives in Atlanta with his wife and daughter.

Roishetta Sibley Ozane

Panel: Building Care Networks with Louisiana Mutual Aid Groups

Roishetta Sibley Ozane is originally from Ruleville, MS. She moved to Louisiana in 2003 to attend McNeese State University and has been here ever since. She is the founder, director and CEO of The Vessel Project of Louisiana, a small mutual aid and environmental justice organization that assists our most vulnerable community members with bill assistance, food, emergency shelter and more. Her organization has also sponsored several local community events and organizations such as SWLA Center for Health Services Juneteenth Festival, Black Men Wear Suits, The Fellowship Breakfast, SWLA Center for Health Services, the Zeta Amicae of Lake Charles Walk with a Purpose for PEDIATRIC HEART AWARENESS, Washington Marion High School Educator’s Rising Program, Combre Fondel Beta Club, Molo Middle school Beta Club, Westlake High School FBLA, Lewis Middle School Cheerleaders and many more. She is also co founder and co director of the Gulf Fossil Finance Hub where she tracks the money that finances fossil fuel pollution in low income, predominantly black communities and in turn she educates and empowers community members to demand that those banks defund fossil fuels and invest in communities. Roishetta is an award winning, internationally known environmental justice advocate and has spoken on stages Nationally and abroad including in Egypt, Canada, Dubai, Malaysia, Japan, and Vienna championing for Black, indigenous, and other people of color and their right for clean air, clean water and sustainable communities that aren’t overburdened by pollution.  Roishetta is an author having written several OpEds and think pieces. She has been honored and featured in Essence Magazine as a hometown hero. Roishetta holds a Bachelor’s degree and Master of Science degree from McNeese State University, Master of Philosophy in Criminal Justice from Walden University and is currently a PhD candidate at Walden University. Roishetta is a member of several organizations including Delta Sigma Theta Sorority, Inc, National Association of University Women, McNeese State University Black Alumni, and a She Leads Fellow Alum for the Power Coalition of Equity and Justice. Roishetta sits on several boards including the People’s Justice Council, Lake Area Regional Business Chamber of Commerce, and participatory grant decision making group for the Hive Fund for Equity and Justice. Additionally Roishetta is a mom of 6 and a grandmother of 1. Her children are who she’s trying to make the world a better place for. Roishetta truly believes that no one is good until we are all good and she proves that daily through her giving heart and philanthropy.

Jessica Michot

Panel: Building Care Networks with Louisiana Mutual Aid Groups

Jessica Michot is a wife and mom of four who lives in south Louisiana.  Her identical twin boys both had tracheostomies, utilized ventilators, oxygen, and g-tubes.  Having twins with medical complexities and disabilities thrust Jessica into the disability community.  With the knowledge and experience from her bachelor’s degree in social work to help, she founded Trach Mommas of Louisiana.  She currently works with Disability Access Solutions in disaster preparedness/relief but also runs Trach Mommas full time. 

About Trach Mommas

Trach Mommas of Louisiana, a 501(c)3 nonprofit organization, was founded in April 2016 as massive state budget cuts loomed with predictions of severe cuts to Medicaid which would affect the disability community. 

Although Trach Mommas was originally conceptualized to provide support to other parents of children with tracheostomies and to advocate for those with medical complexities and/or disabilities , disaster preparedness /relief quickly became part of the mission as a result of the Great Flood of 2016.

Since inception, Trach Mommas of Louisiana has participated in local, state, and national disaster preparedness/relief.  Trach Mommas has worked with state and national officials as well as grassroots efforts to provide essential medical supplies and equipment to individuals with medical complexities and/or disabilities, and the aging population during times of disaster. 

Trach Mommas of Louisiana is a core member of the Emergency Management for Disability and Aging Coalition (EMDAC).  The support group for parents/legal guardians of individuals with tracheostomies contains approximately 230 members across the state.

Trach Mommas of Louisiana has participated in advocacy on the state level with rallies and providing testimony to legislators on items that would affect services to the disability community. Trach Mommas has also participated in advocacy alongside groups such as Southwest Independent Living Center (SLIC) and ADAPT on the national level challenging Senator Bill Cassidy’s Graham-Cassidy bill which would have severely cut and cap Medicaid services.

 

Leo Juarez smiling and surronded by tree branches.
Panel: Building Care Networks with Louisiana Mutual Aid Groups
Leo Juarez is a Mexican native who has called Lafayette, LA his home since the age of seven. He currently works as a Housing Specialist with ARCH (Acadiana Regional Coalition on Homelessness and Housing), where he focuses on securing external resources to help individuals achieve permanent housing.
 
Beyond his professional work, Leo is deeply engaged in community service. As a volunteer with Festival International on the merchandise team, he became aware of the significant surplus of food and the waste that followed. This experience inspired the creation of FOOD — Feeding Others Outreach & Distribution — a community-driven initiative he co-founded in collaboration with local partners. FOOD works to reduce food insecurity and food waste through community fridges and partnerships with restaurants and organizations. The initiative was recently funded by the 24 Hour Citizen Project to expand its network of community fridges and strengthen sustainable food access efforts.

In his personal time, Leo enjoys hiking, immersing himself in nature, reading, and researching topics such as food waste reduction and regenerative farming. 

At the heart of Leo’s work is a commitment to education and empowerment. He believes immigrants are vital to the strength, maintenance, and growth of communities, and he strives to ensure individuals are informed of their rights and equipped to advocate for the resources they deserve.

 

 

The Summit is organized in partnership with Louisiana’s DD Network

 

Human Development Center at LSU Health New Orleans School of Allied Health Professions

 

Louisiana Developmental Disabilties Council

Disability Rights Louisiana. Protect. Adovcate. Empower.