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Graphic with text that reads "Usher Syndrome in Louisiana Symposium & USH One See  Run/Walk with illustration of Louisiana, image of hands piled together in huddle, and logos of LSU Health New Orleans and Ush One See.

 

5th Annual Usher Syndrome in Louisiana Symposium

 

Symposium: Friday, September 19, 2025
Ush One See Run/Walk: Saturday, September 20, 2025

Learn more about research into treatments for those with Usher syndrome and speak with the researchers and clinicians about managing vision loss. Then join Team Usher to run, walk, or cheer on our community.
 

Register now!

Located in Lafayette, Louisiana

More details for both the symposium and the Run/Walk to come! For more information or to pre-register, please email USHinLA@lsuhsc.edu.

Click here to register for the Symposium + Ush One See Run/Walk

About the Usher in Louisiana Symposium

The purpose of the event is to share knowledge and marshal resources to work together to address the leading genetic cause of deaf-blindness that disproportionately affects Louisianans.

 


Group of Ush One See runners wearing matching t shirts. Some people hold white canes.

About Ush One See

Ush One See is a non-profit raising awareness of USH 1C and funds for a potential cure to the syndrome's vision loss.

Learn more


About Usher Syndrome

One baby in about 25,000 is born with Usher syndrome. 

 

According to the National Institutes of Health, Usher syndrome is the most common condition that affects both hearing and vision; sometimes it also affects balance. The major symptoms of Usher syndrome are deafness or hearing loss and an eye disease called retinitis pigmentosa (RP).

There are three clinical types based upon the severity and age of onset of symptoms. Type 1 Usher is the most severe form with profound deafness and balance problems at birth as well as blindness beginning in early adolescence. A single mutation in the USH1C gene accounts for nearly all type 1 Usher cases in Acadian populations.

Learn more from the Usher Syndrome Coalition

 

two hands tactile interpreting
International Usher Syndrome Awareness Day September 20, 2025