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Beckwith/Wiedemann Syndrome Awareness Month

Come learn about Beckwith Wiedemann Syndrome (BWS). The event will be held at 2716 Indiana Avenue, Kenner, Louisiana, on Sunday, April 5, 2020. The event is free and open to the public, but you should email kolivaphotographyllc@gmail.com to reserve a seat and table for gumbo and jambalaya.

OAAS Home- and Community-based Services Settings Transition Plan

The Louisiana Statewide Transition Plan (STP) for Medicaid home and community-based services (HCBS) is out for public comment until March 16th. 

The Louisiana Department of Health submitted this transition plan to Centers for Medicare and Medicaid Services {CMS) to explain how the state will bring its HCBS waivers into compliance with their new regulations that define the settings in which it is permissible for states to pay for Medicaid HCBS. The purpose of these regulations is to ensure that individuals receive Medicaid HCBS in settings that are integrated into and support full access to the greater community. The Office of Aging and Adult Services (OAAS) has developed this transition plan for the purpose of ensuring that HCBS settings within the Adult Day Health Care (ADHC) and Community Choices Waivers (CCW) meet the requirements of the rule and to allow the public an opportunity to provide input on the transition.

For more information, see the Louisiana Department of Health article on the Statewide Transition Plan.

Governor’s Tour at Clara’s Little Lambs

One of the stops on the Governor’s statewide tour will be at Clara’s Little Lambs at Federal City, a Community Childcare Partner with the Human Development Center.  The Governor’s statewide tour will bring local business leaders, early education advocates, and families together to make their voices heard about the importance of early childhood education.

Louisiana Department of Education Survey for Parents of Children with Disabilities

The Louisiana Department of Education is conducting a survey to better understand the types of assistance families of students with disabilities need to support the educational experience of their child/children. Share your input by 2/14/20.

If you are a parent of a school age child attending public school in the state of Louisiana, please take 5 minutes to complete the following survey.

Please be sure to hit the submit button at the end.Also, please share with other families as appropriate.

30 Years of the ADA

HDC joins the Association of University Centers on Disabilities (AUCD) in celebrating the 30th anniversary of the Americans with Disabilities Act (ADA). This landmark civil rights legislation impacts the lives of millions of Americans with disabilities and protects against discrimination and ensures and improves access to opportunities afforded to all. 

“The ADA cemented in federal law the civil rights of Americans living with disabilities. These expectations have served as a new foundation of inclusion for more than a generation. We hope you’ll join us in sharing your stories and celebrating three decades of its success during 2020.” said John Tschida, Acting Executive Director of AUCD.

For more information on ADA, see the official press release from AUCD.

Critical Access Studies: Public Talk and Q&A at Tulane

Aimi Hamraie Flyer

Aimi Hamraie, PhD

Assistant Professor of Medicine, Health, and Society, and American Studies, Vanderbilt University

Most research and writing about accessibility seeks to convince the unconvinced of the value of inclusion. The field of Critical Access Studies goes deeper, however, to question the “how” and “why” of accessibility. In this talk, Aimi Hamraie, PhD, will situate Critical Access Studies within the broader history of accessibility, showing how inclusive design focused on disability as an issue separate from race, gender, and class, and how frameworks such as intersectionality and disability justice have come to better inform what counts as disability.

For more information about this event, please e-mail kcleary@tulane.edu.

This event is fragrance-free. Please do not wear perfumes or essential oils so that chemically injured members of our community can attend.

Upcoming HDC Employment First Training in Baton Rouge

REGISTER NOW!

40-Hour Employment First Core Training

LSU Human Development Center (HDC) in collaboration with Louisiana Association of Persons Supporting Employment First (LA-APSE) has an upcoming training class scheduled in Baton Rouge!

  • January  28-30, 2020 in Baton Rouge at TBD

See the LSU HDC Employment Initiatives Website for more information and to register   

The 40 Hour Employment Core training meets LRS Employment vendor training requirements and OCDD/Medicaid Employment provider rules. Class hours are 9:00 AM – 4:00 PM. The fee for this class is $400 and includes training materials, presentation handouts, access to resources and a certificate of completion which will be issued once identified course assignments have been completed and reviewed. (The fee is $350 for Louisiana APSE members.)

Louisiana APSE Logo
Louisiana APSE Logo

Free Screening of No Small Matter

No Small Matter is the first feature documentary to explore the most overlooked, underestimated, and powerful force for good in American today: early childhood education. Through poignant stories and surprising humor, No Small Matter lays out the overwhelming evidence for the importance of the first five years. The film reveals how failure to act on that evidence has resulted inan everyday crisis for American families, and a slow-motion catastrophe for the country. A moderated panel discussion with early childhood education and business leaders will follow the screening including HDC’s Maria Blanco.

Tuesday, October 24

Delgado Community College City Park Campus

Student Life and Success Center- 2nd Floor

Lac Maraupes Room

5:30pm-8:00pm

Light refreshments provided

Tickets at Eventbrite: http://bit.ly/TrainingGroundsNoSmallMatterMovie

Autism CARES Signed into Law

On September 30, 2019, Autism CARES was signed into law.

AUCD applauds the signing of the Autism Cares Act of 2019 into law by President Trump. This bipartisan law will expand research and coordination, increase public awareness and surveillance, and expand interdisciplinary health professional training to identify and support individuals with autism and their families.

 

What to know about the new law:

  • Authorizes programs at the National Institutes of Health (NIH); the Centers for Disease Control and Prevention (CDC); and the Health Resources and Services Administration (HRSA) through Fiscal Year 2024, and reauthorizes and expands the Interagency Autism Coordinating Committee (IACC);
  • Adds new members of IACC from the Departments of Labor, Justice, Veterans Affairs and Housing and Urban Development;
  • Increases from two to three IACC members who are self-advocates, parents or legal guardians and represent advocacy/service organizations;
  • Directs the Health and Human Services Secretary to prioritize grants to “rural and underserved areas;”
  • Requires a comprehensive report to Congress on the demographic factors associated with the health and well-being of individuals with ASD, recommendations on establishing best practices to ensure interdisciplinary coordination, improvements for health outcomes, community-based behavioral support and interventions, nutrition and recreational and social activities, and personal safety.

Read the official press release here. Note that if you are viewing this from the mailing list, the link will have been replaced. If the link does not work, then copy and paste the following URL in your address bar:

https://www.aucd.org/template/news.cfm?news_id=14209&parent=505&parent_title=Archived%20News&url=/template/page.cfm?id%3D505

FHF Exceptional Times Magazine Features PAY Check Student

Cover of Exceptional Times featuring Victor Castillo

Families Helping Families of Greater New Orleans features Victor Castillo on the front page of the September 2019 issue of its monthly magazine Exceptional Times. Victor is currently in HDC’s PAY Check program and as part of the program in collaboration with Louisiana Rehabilitation Services he recently completed a two week immersion class in American Sign Language (ASL) at Gallaudet University in Washington D.C. Victor’s progress in the program was being hindered because has a severe hearing impairment but never mastered ASL. As a result, his communication consisted of a mixture of some sign language but mostly gestures. Now Victor is continuing in the PAY Check program and taking classes at Delgado Community College where he wants to pursue a career in the automotive industry. To see the September issue of Exceptional Times, click here: https://pub.lucidpress.com/FHFofGNOSept2019ET/#s22NvLjNIUj6