LSU Health New Orleans School of Allied Health Professions hosted the Geaux, Baby, Geaux! Workshop on April 21, 2017, from 7:30 a.m. – 4:00 p.m. at its Human Development Center, 411 South Prieur Street. In addition to training for professionals who work with low-mobility children, teams of participants modified seating, steering and drive systems to prepare a ride-on car for a child with mobility needs. Ten adapted ride-on cars were provided for kids with disabilities who could then use them for their own active mobility.
The Restore Louisiana Homeowner Assistance Program survey opened to all homeowners affected by the March and August 2016 floods. This marks the beginning of the homeowner assistance program through which the state will help flooded homeowners with rebuilding assistance and some reimbursement, once the federal government makes the funds Congress has appropriated to Louisiana available to the state to spend.
The initial survey will be available for all flood-impacted homeowners to take on the restore.la.gov website beginning at 7 a.m. Monday, April 10. This will be the first step for all homeowners who want to apply for recovery assistance. Homeowners can also choose to fill out the survey using a phone number that will be posted on restore.la.gov tomorrow morning. (Please note that this number – 1-866-735-2001 – will be activated beginning 7 a.m. Monday, April 10.) The survey will be available for a period of time. It does not have to be completed on the opening date, and eligibility is not determined on a first-come-first-serve basis.
All 12 participants of the recently completed Orleans Parish Cooking Matters class (including individuals with intellectual and developmental disabilities and their friends, family, and support staff) attended the potluck to show off their cooking skills by bringing healthy dishes to share. Participants reflecting on their experience had exceptionally positive comments, mentioning improved behavior changes such as increased cooking at home, reading nutrition labels more often, and making smarter choices when eating out. Participants were eager to share what they had learned with others and expressed interest in working with our project to start Cooking Matters classes at their churches and community organizations. Two new Cooking Matters classes for individuals with intellectual and developmental disabilities and their friends, family, and support staff began in March. The Louisiana nutrition intern Colleen proved to be an excellent instructor during her first two classes by using creative visuals to support learning.
Additionally, the Louisiana Nutrition Ambassador spoke at a two-parish Community Services Meeting in March. Provider organizations showed an overwhelming interest in the program and the state Ambassador has begun communicating with multiple organizations about starting Cooking Matters classes for the clients they serve.
The Human Development Center at LSU Health New Orleans School of Allied Health Professions will host a conference addressing communication strategies for people with Amyotrophic Lateral Sclerosis (ALS). The two-day conference held in partnership with Team Gleason, called ALS, Communication and All That Jazz, will take place June 9 and 10, 2017, at LSU Health New Orleans’ Human Development Center, 411 South Prieur Street.
The conference is intended for allied health and other health professionals caring for people with ALS, people with ALS and family members, and any other person interested in participating. National experts will address subjects including no-tech, low-tech and high-tech augmentative communication strategies, pro-active message banking, strategies to enhance speech clarity, voice banking, partner-assisted scanning and laser pointer with low-tech boards, assessment and feature matching for speech-generating technology, successful use of computer/AAC device strategies, as well as environmental controls and home automation systems for all budgets. Attendees will participate in a hands-on demo and practice with communication technologies.
As ALS progresses, motor control and speech production may decline. Movement of the arms and legs, and use of speech are severely compromised. People with ALS leave their jobs, give up use of the computer and accept assistance with even simple tasks as their abilities to engage in these activities are compromised. Most people are unaware of the broad range of adaptations and devices designed to compensate for decreased motor control. Many patients can benefit from use of a head mouse, arm supports, or voice recognition software for example. Many people with ALS can continue doing certain tasks, just in a different way. The program can be found here. Links to the presentations, handouts and videos (videos available only after the conference to conference attendees) can be found here.
The registration fee is $60 for the two-day conference. The registration fee includes all conference sessions, breakfast and lunch on both days of the conference.
- Friday, June 09, 2017, 8:15 AM–3:00 PM
- Saturday, June 10, 2017, 8:30 AM–3:00 PM
WHERE: HDC, 411 South Prieur Street, New Orleans, LA 70112
CLICK HERE TO REGISTER
Louisiana is preparing to offer two more Cooking Matters classes this spring. A nutrition student, Colleen, has recently joined the program team as an intern. She has many years of experience with people with disabilities and is excited to integrate nutrition into her work. The Louisiana team continues to work on adaptation to the curriculum to make sure it is as inclusive as possible.
Related News: Tuesdays with Liz
‘Tuesdays with Liz’ is a weekly video series highlighting current issues in disability policy. It is hosted by Liz Weintraub, a long-time disability advocate, and produced by AUCD. If you have any comments, feel free to email to: Liz Weintraub email@example.com or Kim Musheno at firstname.lastname@example.org
In this week’s edition of Tuesdays with Liz: Disability Policy for All Liz interviews four Nutrition is for Everyone ambassadors – Sarah Keathley (Arkansas), Lauren Griffiths (Louisiana), Lee Wallace (Tennessee), and Megan Krampe (Oklahoma). These ambassadors speak about the projects in their states that focus on how eating and learning about healthy food is important for everyone, including people with disabilities.
Lauren’s is the third video in the playlist.
The Advocacy Center and LSUHSC- Human Development Center co-hosted a conference on Advocating for Individuals (and their Families) Living with Fetal Alcohol Spectrum Disorders (FASD) at the Human Development Center on Friday February 3rd. Workshop topics included diagnosis and treatment; early childhood and special education; juvenile and adult criminal justice; strategies and intervention; and advocacy.
FASD is an umbrella term describing the range of effects that can occur in an individual who is prenatally exposed to alcohol. These effects may include physical, mental, behavioral, and/or learning disabilities with possible lifelong implications. Research among grad school populations in four U.S. Cities estimates that as many as 2 to 4 percent of school age children are affected by prenatal alcohol exposure.
As part of the Early Childhood Education Strand, HDC’s own Ashley Steele and Douglas LeBlanc presented on the developmental stages of infants and how FASD affects the achievement of these milestones. They also discussed the importance of recognizing developmental delays and accommodating children with disabilities. Also, HDC’s Sonya Heisser provided useful information regarding the transition process of children with disabilities with regard to special education and related services under IDEA Part C early intervention into IDEA Part B special education preschool services.
The keynote speaker was Dr. Larry Burd the director of the North Dakota Fetal Alcohol Syndrome Center. The title of his talk was: What’s New and What You Should Do regarding FASD.
Other presentations included:
- Stamping Out Stigma: Establishing the Maternal Alcohol History of the Birth Mother through Interviews and Investigation with William J. Edwards, Deputy Public Defender in Los Angeles County and Rebecca Kendig, PhD of New Orleans
- Special Education and FASD with Debra Weinberg from the Advocacy Center of Louisiana and Diane Smith Howard from the National Disability Rights Network in Washington D.C.
- Panel Discussion on Criminal Justice Issues involving Individuals with FASD
- Identifying the Red Flags for Neurocognitive and Neurobehavioral Impairments in Children with FASD in the Juvenile Justice System with Professor David Katner, The Honorable Mark Doherty, Dr. Larry Burd, and Professor James E. Duggan
Links to Conference Materials including PowerPoints and videos of the presentations can be found in this document. Additional conference resources available at the National Organization on Fetal Alcohol Syndrome website: https://www.nofas.org/conference-resources
The Louisiana Deafblind Project for Children and Youth and the LSU Health New Orleans, Human Development Center hosted the Deaf Education Alliance Summit 2017 on January 27 & 28. The Deaf Education Alliance is a grassroots organization made up of individuals, families, and professionals interested in advocating for improved educational services for students with deafness and hearing loss in Louisiana schools.
The Summit 2017 program included two keynote speakers; Rachel Coleman, an American musician/actress and producer of the “Signing Time!” video series and Paula Rodriguez of Deaf Focus Services Baton Rouge who was the 2016 GOLD Service Provider of the Year Award recipient selected by the Louisiana Governor’s Council of Disability Affairs. The program also featured speakers from around the state that addressed topics of interest to the deaf education advocates.
The Summit 2017 enjoyed a live performance by Rachel Coleman as the closing activity for the conference. The performance, which was open to the public, drew audience members from Louisiana, Texas and Arkansas. Children of all ages and their families enjoyed the light hearted musical presentations while learning sign language.
The Human Development Center was awarded a Leadership Education in Neurodevelopmental and other related Disabilities (LEND) grant from U.S. Department of Health and Human Resources, Health Resources and Services- Administration – Maternal Child Health Bureau on July 12, 2016. This 5-year grant will support an interdisciplinary core faculty including Audiology, Developmental and Behavioral Pediatrics, Occupational, Physical and Speech-Language Therapy, Psychology (school and clinical), Special Education, Early Childhood Special Education, as well as Family and Self-advocate faculty. In addition, consultant faculty for the Louisiana LEND include Physician Assistant, Pediatric Dentistry and Nursing with plans to expand to Public Health and other disciplines in the future.
The overall purpose of LA LEND is to prepare health and education professionals, families and self-advocates, who represent the diversity of society to become leaders in Maternal Child Health-related fields. These future leaders advocate for policies that encourage development, implementation and access to supports and services designed to improve the health and education of children with autism spectrum disorders (ASD) and other neurodevelopmental and related disabilities (NDD).
LA LEND provides interdisciplinary training and experiences for graduate students, families, self-advocates, and early-career professionals. The program provides a stipend to Trainees who complete the 300+ hour program. Over the course of 5-years, the program will prepare more than 45 future leaders in Maternal Child Health-related fields to understand and work toward enhanced quality of life outcomes achievable by people with ASD/NDD. The inaugural class of LA LEND includes: two students pursuing Masters in OT, two community college students with ASD, an AUD candidate, a PTD candidate, a parent of a young man with ASD, and a student pursuing a Masters in Communication Disorders (SLP).
To read more about LEND programs follow this link: http://www.aucd.org/template/page.cfm?id=473 (EXTERNAL LINK)
ABOVE: Jenny Lin, one of the LEND participants, shows off Chinese numbers. The only pictures we took during training were those of her posing in front of the board.