3.1.4 Community Homes

Louisiana Statewide Transition Project and Louisiana: Healthy and Ready to Work Fact Sheet Series

 

1/29/01

 


I. WHY IS THIS IMPORTANT?

 

Most young adults dream of the day that they will move out of their families’ homes.  This is an important and exciting milestone for young adults and their families.  It can also be one that is accompanied by concerns, worries, and fears since this may be the first time that the young adult lives away from his or her family. 

 

For individuals with disabilities and their families, these concerns, worries, and fears may be heightened because of the service/support needs of the young adults.  However, person-centered planning can offer a unique approach to begin addressing the dreams, fears, hopes, and needs of individuals with disabilities.  One outcome of person-centered planning for a young adult with a disability interested in moving out of his/her family’s home may be community or group homes. 

 

Community homes are one of several living arrangement options currently available in Louisiana for individuals with disabilities.  However, at one time, community homes were one of very few options available.  With the increased availability of supported living as a living arrangement option for young adults with disabilities in Louisiana, there are now more choices regarding living arrangement options.  Through person-centered planning, visions and goals regarding living arrangements can be identified and pursued so that the lifestyle of the individual matches his/her dreams. 

 

II. KEY POINTS

 

In a community or group home, six to eight individuals with disabilities live together in a house owned and operated by an agency.  The agency is responsible for providing needed supports, assistance, and supervision for the individuals living in the community home. 

 

Support personnel who work for the agency stay in the home with the residents to provide assistance and supervision.  On-going training with daily living skills, such as meal preparation or laundry, is provided to residents of the home.  Support personnel are also available to provide transportation and assistance to residents in community activities, such as shopping, community events, or social activities.

 

However, because a community home is providing supports to a number of individuals, it may be difficult at times to accommodate individual preferences, activities, and schedules.  In addition, since 6 to 8 individuals with disabilities live in the community home, frequently individuals share a bedroom with another resident.  It may, or may not, be possible for an individual to select his/her roommate.

 

Individuals with disabilities and their families should ask community home administrators how individual preferences, schedules, and activities are accommodated in the home.  Some areas that should be considered when considering a community home as a living arrangement include, but are not limited to:

 

·        Does the individual want to live with a group of other individuals who he/she is unlikely to know initially?

·        Will he/she be able to have his/her own furniture and other personnel items (e.g., bed, personnel TV, radio, etc.)?

·        Can residents choose among options for employment or day activities?

·        Do residents get to choose what and when to eat?

·        Do residents get to choose what time to go to bed?

·        Do residents get to decide when and what to watch on TV?

·        Are residents able to participate in activities of their own choosing, even if they are the only residents wishing to do so?

·        Can residents choose not to participate in activities planned for the residents?

·        Is there currently an Ombudsman who visits this community home?

·        Can residents be asked or required to leave the community home against their wishes? If so, what are the circumstances that would bring about such a request?

 

Community homes are funded by Medicaid dollars.  This option is available at no cost to the community home resident, except that a portion of the resident’s Supplemental Security Income (SSI) check, as well as other income, is withheld and directed to the cost of supporting the resident in the community home.  For each resident, Medicaid uses a formula to calculate the amount, typically referred to as “client liability”, to be withheld and paid to the provider. 

 

Eligibility requirements vary from one community home to another, especially concerning different areas and types of disability.  However, eligibility for community home residency is generally considered to be met if the individual has a developmental disability as defined by the state.

 

The Community Living Ombudsman Program (CLOP) is a network of trained advocates who visit residents in community homes to listen to their concerns, respond to their needs, help them enhance their quality of life, and assist them in the exercise of their rights.  Currently the CLOP operates in the Monroe, Baton Rouge, and New Orleans regions, but visits to other homes across the state can be arranged upon request.

 

III. ROLES/NEXT STEPS

 

Students/Young Adults:

High school curricula and post-secondary education programs offer excellent opportunities to assess, develop, improve, and maintain skills in areas that can increase the likelihood of success regarding an adult living arrangement.  These opportunities may include, but are not limited to: daily living skills training; health and medical care skills training; self-determination skills training; and community-based skills training.

 

Young adults with disabilities can use the transition planning process to assist them, their families, and their service/support providers to explore and become familiar with community homes, if this is the living arrangement lifestyle being pursued as a result of person-centered planning.  In addition, they should become familiar with the agencies and staff that operate community homes.  This will allow them to make informed decisions, as well as to be informed consumers of living arrangement services/supports.

 

Families:

While it is natural and understandable for parents to have some reservations about their adolescent and young adult sons and daughters with disabilities moving out of their homes, time spent learning about the options available and the provider agencies and staff of the different options can be time well spent by family members. 

 

To make informed decisions about their sons’/daughters’ future living arrangements, family members will need to become familiar with options, eligibility criteria, and regulations.  The transition planning process offers a unique opportunity for families to be part of a team that can address these and other issues, rather than trying to do so alone. 

 

The Office for Citizens with Developmental Disabilities (OCDD) can assist individuals with disabilities and their families who are considering various living arrangements to become more knowledgeable.  A Support Parent, located in each of the regional OCDD offices, can help individuals and their families learn more about community homes in their region, as well as the providers that offer this option.  In addition, Families Helping Families (FHF) Resource Centers, also located in each region of the state, can share information about community home providers in the area.  FHF can also assist individuals and their families in making contact with other individuals and families who have chosen the community home option, as well as other options. 

 

Agencies:

High school curricula and post-secondary education programs are excellent resources for adolescents and young adults with disabilities to develop, improve, and maintain skills in areas that can increase the likelihood of success regarding an adult living arrangement.  The transition planning process is a proactive approach regarding the systematic identification of preferences, desires, and needs regarding vision building and goal setting for adolescents and young adults with disabilities and their families in terms of the pursuit of adult living arrangements.

 

During the transition planning process, representatives from agencies that operate community homes and/or that provide funding can be integral members of the team.  Not only will their participation assist adolescents and young adults with disabilities and their families to become informed decision-makers and informed consumers, but it will also better equip their agencies to plan, both programmatically and fiscally.

 

IV. RESOURCES/CONTACTS

Advocacy Center  1-800-960-7705

 

Community Living Ombudsman Program  1-800-711-1696

 

Families Helping Families (FHF) Resource Centers

Acadiana:  800-378-9854

Bayouland:  800-331-5570

At the Crossroads:  800-259-7200

Greater Baton Rouge:  888-511-5299

Greater New Orleans:  800-766-7736

Northeast LA:  888-300-1320

Northshore:  800-383-8700

Northwest LA:  888-989-0315

Southwest LA:  800-894-6558

http://www.fhfla.org             http://www.projectprompt.com

 

Office for Citizens with Developmental Disabilities (OCDD)

Region I: Phone: (504) 599‑0245; FAX: (504) 568-4660

Region II: Phone: (225) 925‑1910; FAX: (225) 925‑1966

Region III: Phone: (504) 449‑5167; FAX: (504) 449‑5180

Region IV: Phone: (337) 262‑5610; FAX: (337) 262‑5233

Region V: Phone: (337) 475‑8045; FAX: (337) 475‑8055

Region VI: Phone: (318) 641‑2209; FAX: (318) 641‑2218

Region VII: Phone: (318) 741‑7455; FAX: (318) 741‑7445

Region VIII: Phone: (318) 362‑3396; FAX: (318) 362‑5305

Region IX: Phone: (504) 624-4139; FAX: (504) 624-4136

Region X: Phone: (504) 838‑5357; FAX: (504) 838‑5400

http://www.dhh.state.la.us/occd

 

The Supported Living Network

474 North Foster

Baton Rouge, LA 70806

(225) 924-7998

 

V.  REFERENCES

Advocacy Center. (1998). A Guide to the Rights of Residents of ICFs/MR in Louisiana. New Orleans, LA.

 

Racino, J., Walker, P., O'Connor, S. and Taylor, S. (1993). Housing, supports, and community: Choices and strategies for

adults with disabilities. Baltimore, MD: Paul H. Brookes.

 

The development and dissemination of this document were supported in part by funds from the U.S. Department of Education (Cooperative Agreement #H158A6007, “The Louisiana Statewide Transition Project: A Multi-Constituency Model”) and the U.S. Department of Health and Human Services, Maternal and Child Health Program (Grant MCJ-22HRW6, “Louisiana: Healthy and Ready to Work”). The opinions expressed herein are solely those of the authors and do not necessarily reflect the policy or position of the U.S. Department of Education or the U.S. Department of Health and Human Services, and no official endorsement by either of these two agencies should be inferred.

 

The LSUMC does not discriminate on the basis of race, color, national origin, sex, religion, age, or disability in employment or the provision of services.

 

This document may be duplicated and disseminated in its original form without obtaining permission.

 

Alternate forms of this document are available upon request at 1-888-942-8104 or TDD 1-504-942-5900.